Last action was on 2-27-2025
Current status is Referred to the House Committee on Energy and Commerce.
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Whereas chordoma is a slow growing, yet aggressive bone cancer of the skull and spine;
Whereas it strikes people of all ages and affects more than 25,000 individuals worldwide;
Whereas, each year, thousands of people are diagnosed with chordoma including about 300 people annually in the United States;
Whereas chordomas are among the most complicated tumors to treat due to involvement of critical structures such as the brain stem, spinal cord, and important nerves and arteries;
Whereas surgery or radiation performed by a skilled treatment team can be curative for some patients, but even with the best care possible, the recurrence rate remains high; and
Whereas no drugs are known to cure or effectively control the disease, meaning that patients whose disease progresses after exhausting surgical and radiation options have little hope for a full recovery: Now, therefore, be it
That it is the sense of the House of Representatives that chordoma patients and families need increased funding and support for—
(1) - accurate and early diagnosis;
(2) - the development of new treatments, diagnostics, and cures;
(3) - fewer hurdles between research and new treatments; and
(4) - patient-centric approaches to drug discovery and development.